AMAZING CARE FOR AMAZING INDIVIDUALSPrader-Willi Syndrome Care Coordination

All goals are individualized based on the needs of the client and family. Goals outlined on a plan may include:

• Assistance with PWS-specific diets and weight management
• Consultation and training about PWS to all stakeholders, including but not limited to: school teams, medical providers, community agencies, and more
• Exploring the possibility of residential placement
• Behavioral support
• Identification of community resources and providers
• Support for overall health and wellness of the entire family

PWS Care Coordination is a fee-based service with levels customized based on the level of client need. Level 3 and Level 4 include a full success kit with onboarding of these levels of service.

• Core Services Level 1: Approximately 10 hours/3 months of service
• Basic Services Level 2: Approximately 20 hours/3 months of service
• Extended Services Level 3: Approximately 30 hours/6 months of service
• Intensive Services Level 4: Approximately 40 hours/6 months of service

In addition to various levels of care and plan to move forward, our amazing team is dedicated to making sure all clients and families have the time and tools they need to succeed. Additional services may be added to any PWS Care Coordination package or purchased individually.

• Hourly Care Coordination
• On-Site Observation
• Success Kit

The success kit includes: Stainless steel measuring cups, measuring spoons, exercise band, wallet card for legal situations, IEP meeting card, kitchen food scale, bathroom/weight scale, a FitBit, and 2 Marine locks for food security.