The Prader-Willi Syndrome Association (PWSA | USA) is a national nonprofit organization dedicated to supporting individuals with Prader-Willi syndrome and their families. After reviewing potential partners, it was clear to The Children's Institute team that PWSA | USA is the most knowledgeable, well-respected, and compassionate partner to care for our families moving forward.
, PWSA | USA has been there as a valued resource to unite parents, professionals, and other interested groups to enhance the quality of life for individuals affected by PWS and their families. They empower the PWS community through shared experiences, but also valuable resources such as:
- Family and Medical Support
- Public Policy and Advocacy