A new partner in hope.

After a long history of caring for children and adults with Prader-Willi syndrome (PWS), The Children's Institute no longer provides direct PWS services. As of May 31, 2021, the program is being transitioned to the Prader-Willi Syndrome Association (PWSA | USA).

PWSA is here for you.

The Prader-Willi Syndrome Association (PWSA | USA) is a national nonprofit organization dedicated to supporting individuals with Prader-Willi syndrome and their families. After reviewing potential partners, it was clear to The Children's Institute team that PWSA | USA is the most knowledgeable, well-respected, and compassionate partner to care for our families moving forward.

Since 1975, PWSA | USA has been there as a valued resource to unite parents, professionals, and other interested groups to enhance the quality of life for individuals affected by PWS and their families. They empower the PWS community through shared experiences, but also valuable resources such as:
  • Family and Medical Support
  • Research
  • Education
  • Public Policy and Advocacy

Learn More

Contact PWSA | USA

Learn more about Prader-Willi Syndrome Association (PWSA | USA) resources for family and medical support, research, public policy and advocacy.

Contact PWSA | USA

Take Action

Not sure what the next step is? You can always call our Information Center to speak to a team member who can direct you to the support and answers you need.

Call Us: 412.420.2400

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