The Children's Institute Blog

Transition Tuesdays: Global Links

Posted by The Children's Institute - Mar 20, 2018

Noah Hewitt, a student at The Day School at The Children’s Institute, circles the table knowingly with a hand-held bin filled with medical supplies – baby-bottle tops, plastic IV tubing, and paper masks. Spotting the correct match, he reaches a gloved hand into the bin and starts sorting.

“I like sorting and stuff,” said Noah, 18, who this morning is sporting his customary Pittsburgh Pirates gear. “I’ve sorted here a couple of times. It’s easy for me!”

Noah is one of nearly a half-dozen transition-age Day School students who trek to Global Links in Green Tree, Pa. each week to sort supplies. This week, the supplies they’re sorting – donated by area hospitals and doctors’ offices – are being sent to a rural region of Bolivia. More than 20 bins are stretched across the table. The Day School Community Based Instruction coaches place a different donated medical supply item in each bin. Then, students have to scan the table to find the correct match as they sort through a large array of donated medical supplies. Noah describes the task as easy – but this job takes a lot of concentration and attention to detail. Read More...

Meet The Kids on The Block

Posted by The Children's Institute - Mar 06, 2018

School counselors outside Pittsburgh encountered some issues before winter break when a student, who has Down syndrome, was being bullied by her peers.

“We found that a lot of it was coming from a place of not understanding, of treating someone badly because they’re different,” said Julia Taylor, counselor at Gill Hall and McClellan elementary schools in the West Jefferson Hills school district.

Enter Kids on the Block.

Julia reached out to Judy Parker, who heads the donor-backed Children’s Institute of Pittsburgh program with Bruce Adamson, and explained the situation. Judy and Bruce were at the school, performing with puppets in front of classes of kids, within weeks.

“They did several different, very targeted shows – they were able to hone in on the grade level,” Julia said. “It was a nice shared experience that led to conversation about bullying in the classroom. It led to better understanding.”

Judy and Bruce’s approach is simple: they lead a puppet show where they introduce characters with disabilities and show that, despite differences, people have lots in common.

Judy says there are nine different types of skits they’ve been doing since 1991 with school children in a 60- to 70-mile radius of Greensburg, their home-base. The Kids on the Block interactive puppetry program reached 13,196 children in grades K through 5 in 38 Western Pennsylvania schools last school year.

“I think the important message is the more kids understand the differences, the disabilities, the more they understand the person and feel comfortable interacting with them,” Judy said. “They don’t feel they have to avoid them or stay away from them. The more understanding, the more acceptance.”

The Kids on the Block program, which is used across the nation, “uses the non-threatening medium of puppetry to introduce a number of sensitive topics to children in the classroom,” according to a Kids on the Block team in Chattanooga, Tenn. “Because Kids on the Block uses puppets, this allows for a unique and effective brand of communication, especially since children are often hesitant to interact freely with adults.”

For public schools, the assembly is typically free, as long as the funding is available. The Pennsylvania Department of Education has approved this program, and the Educational Improvement Tax Credit (EITC) provides the funding.

For private schools, the fee for The Kids on the Block assembly is $240 plus mileage for one program and $225 for each additional program on the same day. These fees are used to maintain the quality of the program-- no profit is made for The Children's Institute.

For more information, to schedule an appearance or to find out what funding might be available for your school, call 412.420.2344.


Clinician Spotlight: Kate Duffy, Physical Therapist

Posted by The Children's Institute - Feb 28, 2018

Today, the final day of February, we continue our Clinician Spotlight series by profiling Kate Duffy, a physical therapist in The Children's Institute's Wexford satellite.

I have been working in the pediatric setting of physical therapy for almost eight years. I’ve been at the Wexford satellite of The Children’s Institute for outpatient therapy for about five and a half years. I also have experience in Early Intervention.

Where did you go to college? I graduated from Slippery Rock University’s Doctor of Physical Therapy program in 2010. My undergraduate degree is in Exercise Science, also from Slippery Rock. 
What inspired you to go into your field?
My sister was a competitive gymnast, and she had a number of orthopedic injuries treated through PT over the years. On occasion, I’d be along for some of her sessions and was fascinated by the environment and the process. Later on, I observed a school-based therapist. We saw kids of all ages in schools, preschools, and homes. I enjoyed seeing the variety in age and functional level—I knew that there would always be new things to see and learn and it was sure to be an exciting career path.

What do you like most about your job?
I love learning and using new treatment approaches. I feel like I’m a very different therapist now than I was when I first started working in this field, and I plan to continue to learn and evolve in the years to come. After attending a course a couple of years ago, I’ve taken a huge interest in postural alignment of the rib-cage and pelvis—good alignment in the trunk is such an important building block for all that we do. It impacts the way that we breathe, move, and balance. It can help with pain, change the way someone walks, or help a child to activate muscles in anticipation of a challenge to their balance. I’ve been taking a look at all of my patients through this lens and find that it is beneficial for a number of them, from babies to teenagers (and beyond!) and through a range of diagnoses.
I am excited by the vast expanse of ideas, research, and approaches that can help children of all ages make improvements and reach their goals.

Do you have any pets?
A big, fluffy Labradoodle named Tripp.

Do you have any hobbies?
I enjoy baking, especially cookies and muffins! My family will often go for walks on trails in some local parks when the weather is nice. My interests jump around with various crafts and art-related projects; lately, I’ve been really into painting.

Do you want to give shout-outs to any family – nuclear or otherwise – in the area?
My husband Michael and our kids Bryson and Bree J

If you could have any superpower, what would you choose?
I’d have a “pause” button that I could use to selectively pause time and people/events around me. It would be so cool to literally turn off distractions for a minute to focus on a special moment in the day or finish a task more efficiently.

Meet The Day School's Alumni Group!

Posted by The Children's Institute - Feb 26, 2018

NIcole McGuirk was three when she entered The Day School at the Childrens Institute of Pittsburgh.

But, when she graduated at 21, her mother didn't want her to leave behind the community she had known nearly her entire life.

So May Ann joined with a cadre of other graduates' parents to form The Day School Alumni Group, a loosely linked coalition that seeks to extend The Day School's bonds and community beyond graduation date. It will celebrate its fourth annual spring dinner her at The Day School with food, refreshments and DJ next month.

"It's a means to stay connected," Mary Ann said. "Hopefully people see what we have to offer and connect with other families."

Hannah Bruesewitz started going to The Day School at age 14 and graduated 8 years later.

Hannah’s mom Robie said, "When you graduate from The Day School, you feel like you have lost an important part of your child’s support system. The Day School staff and your child have sometimes been on a long journey together and when you graduate that wonderful support system is gone. It is up to you as a parent to continue to find qualitative opportunities for your adult child. The alumni group gives people an opportunity to connect again with each other, and the graduates enjoy seeing old friends."

In addition to the spring dinner the alumni group, in conjunction with The Day School, will hold the second annual homecoming in the fall of 2018.

Right now, all eyes are set on the March event, and the alumni group is trying to drum up participation.

“Our hope is that people will feel more connected after socializing with other families and graduates,” Mary Ann said.

For more information, email the group at [email protected]


Children's Institute Patient Wins Spirit of Pittsburgh Award

Posted by The Children's Institute - Feb 20, 2018

A patient at The Children’s Institute is being honored by the foundation of one of Pittsburgh’s own.

The Bob O’Connor Foundation – organized in memory of the late Pittsburgh mayor, who died while in office in 2006 – will present Nia Holyfield with its Spirit of Pittsburgh award during a ceremony next month. Several staffers from The Children’s Institute plan to attend.

Nia, a former inpatient now receiving outpatient services here, suffered a bout of meningitis at age 17 in 2012 that left her paralyzed from the neck down. Today, Nia now is working on getting around during therapy sessions with a walker, fine-tuning her balance, and attending Community College of Allegheny County (CCAC) in hopes that she can one day become a nurse and give back.

“This changed me, made me more wise, made me better. It helped me grow as a person,” Nia said last summer. “Sometimes, I can't do things a typical 21-year-old can do. But, in a lot of ways, I’m doing things most 21-year-olds aren’t doing.”

“Nia has come so far since her initial diagnosis. It is rare to see a teen/young adult, with challenges such as Nia’s, take such an active part in their treatment and have the determination to coordinate their own care, manage transportation and schedules with little help from others,” said inpatient social worker Christine O’Brien in a nominator statement for the award. “Nia sets her goals high and works hard towards achieving them. Nia is a pleasure to know and I am truly honored to be a witness to her determination and drive and to nominate her for this award.”

Those behind the O’Connor award agreed.

“What caught our attention about Nia was her spirit of overcoming and never giving up,” said the foundation’s Heidy Garth. “My dad never gave up and wanted to help others. Nia has the same spirit and drive that he did.”


Celebrate Healthcare Human Resources Week

Posted by The Children's Institute - Feb 15, 2018

Know someone who works at The Children’s Institute? Liz Rajkowski, who’s worked in Human Resources here for 30 years, knows them better.

Heard about the new addition to the family? Liz got the news to amend their health insurance before the little kid even had a Social Security number.

Going to the party for their new place? Liz had the address of the house filed just after closing.

“People call me,” Liz laughed. “I like to help people solve problems. I like to give them the tools, the resources to help. Often times, I give them more information than they want!”

Liz is not alone.

A team of four – Linda Allen, Vice President of Human Resources; Lisa Wakefield, Human Resources Generalist; Pam Peterman, Human Resources Associate; and Liz, the longest-tenured on the team – fill out the HR ranks at The Children’s Institute, following employees, and their lives, through arrival and departure, births and deaths in the family, and everything in between. We celebrate them today as part of Healthcare Human Resources Week.

There’s a cycle to the HR year, one dictated by budget planning, recruitment efforts and, of course, benefits, which includes annual Open Enrollment and all of that Affordable Care Act paperwork.

“It’s a huge job to get that little 1095-C in your hand,” Liz laughed.

“You have to be up on all the various employment and benefit regulations,” Linda added.

The HR team educates people through choosing their health insurance and other benefits, managing their 403(b) account, coordinating annual trainings and working closely with Payroll to assist employees. Recruitment was previously decentralized to department managers but now HR facilitates the process with managers using technology to promote job vacancies – that includes LinkedIn, Facebook and the Internet – and reach more candidates.

“I enjoy talking with the candidates and offering them the position, and they are so excited and happy to come work here at CI,” Lisa said.

Not only is CI getting more applications – which is great –but, since HR receives all the resumes, we can source candidates who may not meet the qualifications for the position they initially applied for but can be considered for other positions based on their education and experience , Linda indicated.

When it comes to recruitment, Linda or Lisa might be the contact name for the job vacancy notice, but Pam checks the references.

“Bringing a new hire on? I like getting to know them,” Pam said.

HR also is happy to extol the benefits of the Employee Assistance Program, where staffers can find help with counseling, discover care options for their children or elderly relatives – even draft a will.

“What happens is, when you have a history of the place, you know about what’s happened before,” Liz said. “I really like to be able to help people. When I can help them resolve something, that’s the most satisfying part of the job.”


Feeding Breakthrough: Juliette's Story

Posted by The Children's Institute - Feb 09, 2018

Kerry Ann Stare is familiar with the sound – the screeching of her daughter Juliette, now nearly 2, dragging the chair across the kitchen floor to sneak a tasty snack from the out-of-reach cabinet.

“She’ll drink water, she’ll drink juice, she’ll drink those yogurt-drink-type things,” Kerry Ann said. “We have to discipline her for going up into the cabinets to get food she wants.”

It wasn’t always this way.

Born Feb. 24, 2016, Juliette quickly showed a lack of interest in feeding, be it with breast or with bottle. Whenever she did feed, she’d gag or scream or both. Kerry Ann, who has an older daughter, tried to treat it as reflux and find the right approach to feeding. Nothing worked. In less than two months, Juliette was admitted to Children’s Hospital of Pittsburgh for “failure to thrive.”

“It was very difficult to get [doctors] to accept that feeding was uncomfortable for her,” Kerry Ann said. “We had scopes. We had the swallow study. We did everything.”

By June, they had surgically inserted a G tube for feedings.

“I felt pretty hopeless because, at that point, she wouldn’t swallow anything at all,” Kerry Ann said. “This is the most basic human instinct – to feed yourself to survive – and she didn’t have that.”

Enter The Children’s Institute of Pittsburgh.

At the same time she had her G tube inserted, Juliette became one of approximately 230 patients per year admitted to The Children’s Institute’s outpatient and inpatient functional feeding programs.

“They just needed our therapy,” dietitian Jodi Smith said. “I think it’s just that we get it. We know what these Moms are going through and we establish goals we know they’re going to meet.”

“And kids know – they know when something’s not right. And they’ll stop eating if they can’t breathe or they get reflux,” Jodi added. “It’s not about likes or taste. It’s about survival and feel. It’s a learned behavior. And we just have to figure out why.”

So, the clinicians here continued to experiment with bottles, eventually finding that Juliette would drink from the clear squeeze bottles used to apply hair dye, if she had a special tube. This way, she controlled her intake and could anticipate the amount of liquid she was ingesting.

Within months, there was forward progress and the little girl “graduated” from the feeding program – the only remnant of her G tube was the scar from inserting it.

“It was a completely different experience [at The Children’s Institute],” Kerry Ann said. “I told [the clinicians] her symptoms and I told them her stories. I kept expecting them to say, ‘We don’t know what to do.’ They weren’t mystified. They weren’t intimidated. They just knew what to do.”

A lot of that is experience and taking a holistic approach to treatment, said speech-language pathologist Marybeth Trapani-Hanasewych, who worked with Jodi on Juliette’s feeding therapy.

“We look at the whole child and family and we listen to what they’re saying,” Marybeth said. “We modify the strategies based on their feedback – it’s not a one-size-fits-all. And I think we also really share in the joy of their progress.”

“Kerry Ann’s still so excited about it – and we are, too,” she added.

Today, Juliette eats even better than her older sister, Kerry Ann said.

“You would never imagine that for the first year of her life, she didn’t want to put things in her mouth and eat,” she said. “If you had told us back in June of 2016, that, ‘Not only will she be eating, but you’ll be after her for climbing up to get food or snatching people’s cups’ – I’d never have believed it.”


Clinician Spotlight: Beth Ann Brednich

Posted by The Children's Institute - Jan 31, 2018

Today, for our Clinician Spotlight, we asked questions of Beth Ann Brednich, rehabilitation engineer at The Children's Institute of Pittsburgh.

When did you start working in your field?
January 2004

When did you start working at The Children’s Institute?
November 2006

Where did you grow up?
In the North Hills of Pittsburgh

As a child, what did you want to be?
A teacher

What did your high-school guidance counselor say you should do for a living?
Be an engineer

Where did you go to college? Did you do any post-grad work and, if so, where did you attend and what did you study?
Case Western Reserve University-BSE in Biomedical Engineering, University of Pittsburgh-MS in Rehabilitation Science and Technology

What inspired you to go into your field?
Working at a summer internship before my senior year of college at the University of Pittsburgh’s Human Engineering Research Lab

What do you like most about your job?
The variety of activities I do every day - I never have the same day twice, all of the children and young adults I get to interact with, helping clients become more independent in their lives with the use of technology, and my coworkers.

What do you like about Pittsburgh?
All of the outdoor activities available and Pittsburgh’s beautiful skyline

Do you have any pets?
One orange and white cat named Snickers

Do you have any hobbies?
Hiking and outdoor activities

Do you want to give shout-outs to any family – nuclear or otherwise – in the area?
My mom and dad, my sister and her fiancé, my brother and nephews, and of course my DH and two children

Who is your favorite musician?
Toby Keith, Tim McGraw, or really any country music

If you could have any superpower, what would you choose?
The ability to instantly calm and quiet a screaming baby/toddler

If you were given a $1 million check to give to one group or charity – other than The Children’s Institute – who would get it? Why?
I would give half to my church and half to a group (or create one) who gifts grant money to families for home accessibility modifications.


TDS Students Take To PIT Airport

Posted by The Children's Institute - Jan 25, 2018

Travel surrounds our Day School students, even those who face obstacles with their own mobility.

"Our students come to school in a bus or van, they travel around their communities in cars,” teacher Chrissy Stevens said. “We were joking about the movie ‘Planes, Trains and Automobiles’ – and trains will come up eventually.”

So, considering that, Chrissy and social skills therapist Stacy Porter Smith did what came naturally: they took her students to planes.

A group of eight Day School students from Stevens' High School Multiple Disabilities Support Classroom toured Pittsburgh International Airport recently, getting an up-close view of what it’s like to be an air-traveler. For many of them, it was the first visit to the airport. They went as part of their CBI, or Community-Based Instruction, program, where students have the opportunity to practice generalizing skills that they learned in the classroom into a community setting.

“We took pictures, checked out the baggage claim area and went through security,” Smith said.

She went on to explain that, while at the airport, students practiced their social, communication and safety skills. The students also thoroughly enjoyed the tram ride between the air and land terminals.

"It was definitely a highlight," she said.

At the security checkpoint, the TSA learned a lot about disabilities. The TSA agents gained exposure to travelers with multiple disabilities and their needs–such as limited mobility, feeding tubes and individuals with augmentative communication devices.

The airport’s Jeff Martinelli, who is the manager for customer programs, said it was great to host the students. TDS was one of the first groups to come through on the MyPitt Pass, which allows non-travelers to access airport amenities such as stores and restaurants.

“When we get these kinds of opportunity, especially non-passenger, that’s a benefit to the TSA,” he said, stressing that TSA agents constantly are undergoing training for their roles at the transit hub. “It was definitely beneficial for EVERYONE at the airport.”

What’s up next for these traveling students? They are taking to the water, of course. The students are planning a CBI to visit The Gateway Clipper and ride on Pittsburgh’s three rivers.


Meeting A True 'Extended' Family

Posted by The Children's Institute - Jan 02, 2018

They have different parents and different last names, but they’ll always be brothers and sisters.

The children, seven in all, were born to the same Allegheny County woman but their real journey started after they left their biological home of abuse and neglect, and were fostered, then adopted, in four different Southwestern Pennsylvania families. Those parents – who we profile today in the spirit of a new year and new beginnings – now are raising the children separately but keeping them in close contact with each other, redefining what it means to be a sibling and a family.

“It’s four families raising one whole family together. It’s not always easy but it’s family and at the heart of it are seven children that deserve to have that contact,” said Bridgette Jodon, who – through Project STAR at The Children’s Institute of Pittsburgh, and with her husband, Jason – adopted Aubrey, now 6, and Adalynn, now 12, into their Armstrong County home. “When they first started meeting, you knew you wanted to maintain this bond, but it was difficult. It wasn’t conventional but it was a bond. As the bond progressed, they started to realize, ‘We’re supposed to be playing together – this is family.’”

The children get together at holidays and birthdays, and for more-than-occasional visits where the only thing on the agenda is sharing their new lives together and pushing away the past.

Carrie Velasquez met the extended family at a Christmas party in 2014, where she and her husband Frank went to meet the boy who would become their son – Jason, now 8.

“That was our first introduction to the family. It’s weird. You knew by accepting this placement, these people were going to be in your life forever. You don’t know them and they don’t know you,” Carrie said. “But it’s been good. From there, we’ve stayed together and communicated. We’ve really started to rely on each other – for information, for memories.”

Mary and John Tadler of Pittsburgh’s North Hills got married a little later than their friends, had a biological daughter, now 8, and, when considering the future of their family as they entered their 40s, were drawn toward foster care.

“We decided there were many more children out there who needed help. There were plenty of kids right here in Allegheny County who needed homes,” John said.

Project STAR brought them two children from the extended family for foster care –first, a six-week-old, now 3, and then a three-week-old, now 15 months old. They went on to adopt both girls.

“I treat them as my own, I treat them as any mother would treat them,” said Mary, who added, with a laugh, “I think I’ve had the motherly instinct since I was 12.”

For Laura and Ralph Kacy, joining the extended family was like answering a call from God. Two years ago, their 29-year-old biological son got siblings from the extended family: Mark, now 14 and the eldest of the seven, and John, now 10.

“We most commonly think of a mission as people going ‘over there’ – ‘Go to Cambodia, Go to Africa.’ This is a mission of a family. Even though we have different denominations, we all talk about how God brought this together,” said Laura, a healthcare worker who lives in Butler County. “It was a call to ministry to me to even enter into this. God has just spoken this into my life. When I was praying, I’d see that no one is invisible.”

Raising the extended family has not been without its struggles. Some of the children have developmental delays or disabilities. One was 7 and not potty-trained. Another, at 5, had never brushed his teeth. A third, upon entering what would become his forever home, had never eaten a fruit or vegetable.

When Adalynn came to the Jodons, she was in second grade and didn’t know her letters or how to add 2 plus 2.

“I looked at the special education teacher and said, ‘She’s got a normal IQ. Go to work,’” Bridgette said. “She’s now in fifth grade and she’s completely on grade level. Her last report card, she had 2 As and two high Bs. There’s a lot to be said for faith and love.”

On Jan. 16, 2015, when Jason, then almost 6, came to the Velasquezes’ Greater Pittsburgh home, he was not potty-trained and, at school, would throw tantrums where he would take off his clothes and hide under his desk.

It took Carrie and Frank just 10 days to potty-train him.

“When he came to us, it was ‘failure to thrive,’ and he was malnourished,” Carrie said.

In his first 18 months as a Velasquez, Jason grew nine inches. He has autism, but, in those months, he shed his diagnoses of other intellectual disabilities. Carrie is modest about her role in his turnaround.

“He was a good fit for us,” said Carrie, who also has a biological son, Kaden. “It was just meant to be.”

“Since they’ve been placed in their forever homes,” John said – “It’s turned around 90 percent,” Mary interjected.

When the two boys from the extended family were adjusting to their new forever homes with the Kacys, Laura would wake up John by saying, “You are a wonderful creation of God.”

“Mark would say, ‘Who am I?’ I’d say, ‘You are a warrior for Christ,’” she said.

Some of the children changed their first names, led by Adalynn’s example. The 14-year-old boy chose Mark, which he didn’t realize means “warrior.” John’s interest was piqued.

“He said, ‘I change my name!’ My husband said, ‘To what?’ He said, ‘Apple juice!’” laughed Laura. “Then, a few weeks later, he got it. He said, ‘I be John!’” John didn’t realize his name means “beloved of God.”

“When that realization came to me, I said, ‘Lord, you really have been walking with us through this,’” Laura said.

The parents aren’t the only ones led by their faith.

When asked what advice she has for other children seeking their forever families, Adalynn didn’t hesitate for a second.

“Never stop praying that God will lead you to the right path,” she said.


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