PWS Blog

PWSPA Golf Outing

Posted: May 11, 2017 by The Children's Institute



  Athletes of all shapes, sizes, and abilities are taking part in the Pennsylvania chapter of Prader-Willi Syndrome Association’s annual golf outing at Meadowink Golf Course in Murrysville on June 5.

   
  But will Mike Azzara – co-organizer of the event, which is the group’s only fundraiser – be there to golf?     
 
  “Yes – not well,” he laughed. “When you only golf three times a summer, you’re not going to get any better. We have some good golfers, though, and some that golf once a year. We have some that have been there every year since the onset. The format is a four-person scramble, so all contribute something.”
   
  The fundraiser started with 52 participating golfers in 2000 – a year after Mike’s grandson, who also is named Mike, was diagnosed with PWS. Mike has organized the annual event ever since with a third Mike, Mike Fabio, whose son Stephen has the syndrome. This year, they expect between 100 and 130 golfers. Funds help the organization and help offset costs for families attending PA chapter mini-conferences as well as the PWSA-USA national conference.

     
  The Children’s Institute will be represented by a foursome at the event and advertising in the event program. But EVP and COO Stacey Vaccaro, one of the golfers, said the day is about so much more than golf and golf programs.
   
  “Serving individuals with PWS has been part of the fabric of The Children’s Institute for nearly 40 years and events like this are a great way to show our support and build awareness for this unique syndrome,” she said. “We are looking forward to a great day for a great cause!”
   
  “I’m looking forward to attending the PA Prader-Willi Syndrome Association’s golf outing this year – that should be a memorable event based on our foursome,” added CFO John Jubas. “The association volunteers do a tremendous job throughout the day.” 
       
 For more information or to make a charitable donation to the Pennsylvania chapter of the Prader-Willi Syndrome Association, call 412-952-6360 or 724-256-0284.     


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