PWS Blog

PWS And The Holiday Season

Posted: Dec 06, 2017 by The Children's Institute


The holiday season is a time for family and celebration but it also can be a period of increased stress and anxiety for people with Prader-Willi syndrome and their loved ones. The Children’s Institute PWS Care Coordination Program would like to share some information that can help keep the holidays be fun and safe for everyone.

Some ideas for this December:  


  • - Knowing the holiday meal menu ahead of time will help you plan food choices – ask the host or hostess for details.
  • - Discuss the food and the timing of holiday meals ahead of the time they’re served so there will be no surprises and no disappointments.
  • - Plan seating arrangements to help your loved one with PWS avoid sitting near food or condiments.
  • - When the meal is done, make sure the food is put away or constantly supervised.

Your loved one must have the security of knowing you will be strong in your commitment to keep them protected from food – in spite of themselves. Giving in, even once, leads to several battles ahead.

Please visit these links for more information


If your loved one with PWS complains of symptoms like their stomach hurting or cramping, has nausea and vomiting, or refuses food and appears ill and more lethargic than usual, they should be taken immediately to the emergency room. Inform medical staff there about the abdominal concerns associated with PWS, direct them to www.pwsausa.org, and then go to the site Medical Alert.


 

 


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