PWS Blog

It's Christmas in July!

Posted by The Children's Institute - Jul 25, 2014

It must be Christmas in July! One of our patients recently wrote a letter to Santa Claus and received a response with the help of our amazing nurses. Read More...

Exciting New Prader-Willi Syndrome Research at The Children's Institute

Posted by The Children's Institute - Jun 26, 2014

This month, we sat down with Dr. Roxann Diez Gross, PhD, CCC-SLP, Director of Research at The Children’s Institute, and Ronit Gisser, M. Sc., CCC-SLP, Research Administrative Assistant, to get the scoop on their most recent PWS research project. They are finalizing results of a study that has the potential to improve the clinical treatment of patients with Prader-Willi syndrome.

What was the focus of the study?

The study looked at swallowing and respiration of patients as they ate and drank. That’s important because, too often, patients with PWS choke and aspirate. This is the first time that swallowing function has been investigated in the PWS population.

May is Prader-Willi Syndrome Awareness Month

Posted by The Children's Institute - May 31, 2014

May is Prader-Willi Syndrome Awareness Month. What month could be more appropriate to launch our new Center for Prader-Willi Syndrome Blog? Several times a year, our expert team members will share insights based on their experiences working with individuals with Prader-Willi syndrome. Read More...

News and Events

Like us on Facebook