PWS Blog

A Day with the Pittsburgh Pirates

Posted by The Children's Institute - Oct 07, 2014

Sunday, September 14th was a special day for the Prader-Willi syndrome community in Pittsburgh,because we were able to meet up with our favorite baseball team: the Pittsburgh Pirates! Pirates Charities hosted kids and families from the PA chapter of the Prader-Willi Syndrome Association for a fun fill day at PNC Park. The Children’s Institute’s patients with Prader-Willi Syndrome were lucky enough to be personally invited to spend the day with the Pirates’ manager Clint Hurdle and assistant coaches.  Read More...



Back to School Tips

Posted by The Children's Institute - Aug 28, 2014

It's back to school time, which brings new teachers, new friends, and sometimes new challenges. Our inpatient teacher, Amy McTighe, MEd, answered some questions that she frequently hears from parents of children with Prader-Willi syndrome. Read on, and make it a great school year! 

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It's Christmas in July!

Posted by The Children's Institute - Jul 25, 2014

It must be Christmas in July! One of our patients recently wrote a letter to Santa Claus and received a response with the help of our amazing nurses. Read More...



Exciting New Prader-Willi Syndrome Research at The Children's Institute

Posted by The Children's Institute - Jun 26, 2014

This month, we sat down with Dr. Roxann Diez Gross, PhD, CCC-SLP, Director of Research at The Children’s Institute, and Ronit Gisser, M. Sc., CCC-SLP, Research Administrative Assistant, to get the scoop on their most recent PWS research project. They are finalizing results of a study that has the potential to improve the clinical treatment of patients with Prader-Willi syndrome.

What was the focus of the study?

The study looked at swallowing and respiration of patients as they ate and drank. That’s important because, too often, patients with PWS choke and aspirate. This is the first time that swallowing function has been investigated in the PWS population. Read More...



May is Prader-Willi Syndrome Awareness Month

Posted by The Children's Institute - May 30, 2014

May is Prader-Willi Syndrome Awareness Month! What month could be more appropriate to launch the Center for Prader-Willi Syndrome Blog? Each month, our expert team members will share insights based on their experiences working with individuals with Prader-Willi syndrome. Read More...



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