Prader-Willi Syndrome Treatment & Management

The Center for Prader-Willi Syndrome at The Children’s Institute of Pittsburgh is the world’s only comprehensive, hospital-based inpatient program for medical, behavioral and rehabilitation management of both children and adults with Prader-Willi syndrome (PWS). Our program uses an interdisciplinary team of physicians, nurses, dietitians, occupational, physical, speech/language, music and recreational therapists, psychologists and teachers.

prader willi syndrome

Our team teaches behavioral control in the living environment, nutrition awareness, physical exercise and motor control, as well as social skills and self-motivation. Patients learn behavioral self-control while families and caregivers receive extensive training to help maintain the structure and support of the program following discharge.

The Children’s Institute provides:


  • Expert hospital care for adults and children with PWS and related disorders
  • Specialized dedicated setting, which meets the unique needs of individuals with PWS
  • Absolute food control (often not achieved in general psychiatric or medical units)
  • Experienced medical management
  • Calm, skilled nursing staff who are extensively experienced with gaining patient cooperation to achieve necessary medical interventions
  • Individualized psychiatric and behavioral treatment
  • Intervention for cardio-pulmonary deterioration, acute psychiatric decompensation, and behavioral/environmental crises

Together, we achieve the amazing.

Our program treats the most challenging individuals with PWS— and we get the best results! On average, patients stay with us for 60 days and achieve the following during that time:

  • 27 pound average weight loss
  • increased compliance with behavioral management

The results continue after completion of the program:


  • 96% of patients continue or sustain weight loss 18 months post-discharge, with an average total weight loss of 56 pounds
  • 80% of patients have no acute or medical admission 9 months post-discharge
  • 95% of patients have no psychiatric admission 9 months post discharge

In addition to our traditional inpatient program, The Children's Institute also offers consultation services for Prader-Willi syndrome patients, referring them to different therapy departments on an outpatient basis. Finally, our PWS program shares its expertise in a series of educational training modules, delivered live to schools, residential facilities, and other professional organizations.

Download printable information here:
Prader-Willi Syndrome

To make a referral or for more information, please contact Dr. Amy McTighe at 412-420-2436.

In order for a pre-admission call to be scheduled, the form at the bottom of the page needs to be completed and submitted in its entirety to
[email protected]


     

 

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