Prader-Willi Syndrome Treatment & Management

  • The Children’s Institute of Pittsburgh offers a Care Coordination program, consultative services, and educational training modules to meet the needs of persons with Prader-Willi syndrome (PWS) across the country. Specifically, we provide consultation services in education, nutrition, and training -  both locally and nationally. Consultation is available in person, or by telepresence or telephone. Additionally, our series of educational training modules are delivered live to schools, residential facilities, and other professional organizations. 

    We continue to evaluate inpatient admissions on a case by case basis for individuals with PWS who meet admission criteria for inpatient rehabilitation. Under the Centers for Medicare/Medicaid Services (CMS) guidelines, inpatient admission to a rehabilitation hospital like The Children's Institute must be "reasonable and necessary," and patients need to meet the criteria for an inpatient rehabilitation admission. When admitted, patients will benefit from intensive rehabilitation and staff with specialized knowledge in PWS and all of the resources of The Children's Institute. 

    Our dedicated team continues to be dedicated to individuals with PWS, and we are interested in better understanding how we can help with efforts to meet the needs of the population. One of the innovative ways we are trialing is a service called care coordination specifically for individuals with PWS. If you are interested in learning more or you feel like you or a loved one may benefit from care coordination, please contact us.

    For more information, please contact administrator Amy McTighe.




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