Prader-Willi Syndrome Treatment & Management

 The Children’s Institute currently is evaluating the services we provide to children and adults with Prader-Willi Syndrome (PWS), following the recent resignation of the medical director of our PWS Center of Excellence. Our commitment to the PWS community remains very strong and we believe this assessment is an important step toward continuing to support persons with PWS in the future.


The Children’s Institute temporarily is suspending admissions for adult patients with PWS, though patients under 18 with PWS and a behavior health crisis could be served in our Behavioral Health Unit. This is not a PWS-specific unit and patients under 18 would be considered on a case-by-case basis. We will continue to offer our consultation services in education, nutrition and training both locally and nationally. Also, PWS program shares its expertise in a series of educational training modules, delivered live to schools, residential facilities, and other professional organizations. 
  

According to President and CEO David Miles, “Our decision to assess our program for children and adults with Prader-Willi Syndrome reinforces our commitment to this community. It is an important opportunity to help us serve individuals with PWS in the best possible way.”  As a Center of Excellence, our goal is to use our expertise to develop the most appropriate solutions for even more individuals with PWS.


We are reaching out to work in partnership with the PWS community and all stakeholders to help our program evolve to meet the needs of individuals with Prader-Willi syndrome. We invite you to get involved in the process by submitting your name and taking a brief survey at the appropriate link below.

  
For PWS clinics: https://www.surveymonkey.com/r/PWSClinics

For parents: https://www.surveymonkey.com/r/ParentPWS
  
For service agencies: https://www.surveymonkey.com/r/ServiceAgencyPWS
 
For schools: https://www.surveymonkey.com/r/SchoolPWS
 
For group homes and residential providers: https://www.surveymonkey.com/r/GroupResPWS
 
For providers: https://www.surveymonkey.com/r/ProviderPWS
prader willi syndrome

 

         

Download printable information here:
PWS Overview

PWS Intake Packet for Admission
To make a referral or for more information, please call 412-420-2285. 
 
 

 

       


       

 

 

 

     

 

 

 

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